Tuesday, May 22, 2018

Hubby is HOME!

So happy to announce that Dan made it back safely from his deployment a few weeks ago today! Ethan and I drove about an hour to pick him up from BWI and Ethan was SO excited to see his daddy, it melted my heart! Check out Ethan’s Veptr Journey on Facebook to see the adorable video when Ethan saw his daddy walk thru the doors.
We’ve been hanging out as a family, we went to King’s Dominion amusement park and trying to have as much fun as we can with all of this rain and school/therapy. We just got back from a trip up to Philadelphia, Ethan’s surgeon wanted to see us when dan got back from his deployment. So we went up Sunday, which happened to be the 5th annual thoracic insufficiency syndrome reunion at chop. We got to meet other veptr families and kiddos we’ve only known from the veptr kids Facebook group. We got to celebrate the amazing doctor who invented this device and gave our children a chance for life. Pretty amazing.
During the appt Dr. Campbell mentioned he wants Ethan to have x Rays in 6 months and we’ll see if he’s good to wait longer for surgery. He said it may even be another year or two until he needs surgery next, which is unheard of! Waiting a year like we have is unheard of, but waiting even longer is just plain amazing. Ethan does horribly with the surgeries, so any extra time we can wait is an absolute blessing! We are now back home, Dan is off this week and will return to work next week. He will be starting a new job at the pentagon and on Capitol Hill. We are so excited to be able to enjoy our summer without a surgery lingering over our heads. We also traded in the Land Cruiser for a Lexus model that's much newer. It's sooooo nice, we love it! Lots of things happening, but all for the best!

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